Log onto Squarespace
Archives

Entries in Family (2)

Monday
Jul282008

My Daddy...


... has been diagnosed with invasive gastric cancer. I am in Orlando with my family as dad goes through testing and, eventually, treatment. He spent last week in the hospital, but had to be discharged in order to continue testing... a stupid and cruel requirement of his insurance and the hospital's policy.

The tumor fills his stomach, has spread to his esophagus and he has three spots on his liver. He's going to have a PET scan in the next day or two and depending on that result, he will either have surgery to remove the (more) localized cancer before starting chemotherapy or if the cancer is very invasive, he will jump right to chemo. If he has surgery, his entire stomach will be removed (a gastrectomy) or, if needed, part of his esophagus will also be taken with his stomach (esophagogastrectomy). Not to be morbid, the prognosis isn't good.


My family is bizarre in their grief. Some are coping with the loss of control by gripping control of others with an iron fist. I've been yelled at for not unloading the dishwasher in the right order and not hanging the bathroom hand towel properly. sigh It's been a challenge hanging out with people saying things like, "I want the tv when you die."

This past weekend, we had a giant family reunion and it was wonderful! The picture above is my daddy with his G-Tube and his PICC line, laughing his head off. We all laughed until our sides hurt and we had tears streaming down our cheeks. It was the best medicine for everyone.

I tell you all this because this is very sudden and my dad will be incapacitated by the end of the week. We all could use your prayers, good thoughts, light and love.

Even me - "the strong one."

Saturday
Feb172007

My Sister (again)

So, since writing about my sister, she and I have spoken and/or emailed every single day since.

Today we talked about... well, surface talked about... how peripheral our relationship has been as siblings and how that really has been pretty sad. She told me she hated going to family dinners or anything because I acted like I didn't even want to sit by her - and she often felt like she should just die because she was a piece of shit in the family. She said the only thing that keeps her alive is her children. I sent a silent prayer aloft that the goddess gave her children even if she is struggling with being a good mother with them. (See me crying?)

I feel so horrible, so guilty. These last couple of weeks, I have spent time with her, trying to help her feel not so stupid or ugly or useless (and, oh, it is a huge challenge because of her programs) - where have I been all these years? Now I feel obligated... no, wrong word... challenged... implored by my heart to undo all that I am responsible for in that pained heart of my sister's. I doubt I can fix the whole heart, but I want to do my own part at least.

I talked to my partner about bringing my sister and my younger niece to come to live with us so I can help her get the surgeries she needs, get off the Fentanyl she's addicted to (my sister's already asked for help with that) and find a way to help her become independent and she didn't hesitate to say yes about bringing her here to live. I was shocked (happily so!) and called my sister the next day and made her cry.

When my sister had her horrible motorcycle accident, she had to live with friends because no one in our family took her in as she recovered. I had a young family and I can't answer for why my parents didn't. It has stabbed my sister's heart that all this time she has had to struggle pretty much alone. She was stunned that I would offer to bring her and her daughter into our small home even after our difficult past relationship.

The past couple of weeks have been a time of my listening mostly... she telling me her pains and how she spends time watching the world go by outside her window and how she watches black & white movies on the television. She speaks of how her youngest daughter hasn't ever had her own room, how she sleeps on the couch, doesn't have a closet, how she rarely brings friends over, how she is a wonderful A & B student. She tells me of the challenges of raising two girls as a single disabled mom with one daughter who is physically abusive and how she doesn't know what to do when she can't fight back. She understands why I won't invite that niece to come live with me. I love her, but will not have her in my home. The healing is for my sister right now, not focused on my niece.

I told my sister that when she told me she had Hepatitis C, I had a hard slap in the face of what my life would be like without her, the only person who knew me as a child besides my mother and brother. Even my father didn't know me as a kid. I've told her I love her in every email and every phone call. I need her in my life. Even when it is hard and hurts. (And I am sure it will be and will.)

I am going home in a week because a lot is going on... my step-mother is dying and my sister needs to see me... feel me hug her to believe I do care about her, that I will sit with her at dinner and talk to her and not ignore her. I am going home to take photographs of death and illness. Of oxygen and wheelchairs and last breaths and pain and sadness and rememberances and tears and laughing memories and facing death and capturing wisps of life as they fade into the evening light.

I will come home 10 days later a different woman. I will share with you my photos along the journey while there and afterwards. Please be patient if I am not able to process/write for a few days... I am digesting and trying. It just might take some time and tears.

Again, I know this isn't directly midwifery, but, as someone pointed out, in a way, it is. I am midwifing my sister... and now, my step-mother.

Let me write a separate post about her.

Thanks for listening.